Author Topic: why this is the alternative board so important for P?  (Read 941 times)

0 Members and 1 Guest are viewing this topic.

Offline steelem

why this is the alternative board so important for P?
« on: February 02, 2012, 08:40:35 PM »
thought i needed to make this post as i often roam onto other boards on the site and its always the same questions and the individual alot of the time is in pain and pure confusion why they have this - some come here but alot dont - so this for me is what this board is about - stage 1 p is creams stage 2 is uvb stage stage 3 is hospital stay over stage 4 is the stuff that for me is the most worrying and the consultant will only put you on this unless they have to & stage 5 is the bio stuff last hope now lets hope most of us here are at stage 1 & 2 this is where i was and have always tried to find the answer as i dont want that stage 4 as stage 3 for me would be skipped anyway as coal tar doesnt agree .. so for me when i came to the site it was all about buying this new cream this vitamin this spray and i even went to the length of covering myself in a clay from the dead sea for 6 months  & i have done this sort of scenario for the last 15 years - now i was almost at stage 4 almost over 24 months ago but i told consultant i had another last plan & that was to change my diet round as a last hope and stick with the new plan - for 12 months this sort of passed but p come back then with plan b realising that it was the eating habits i had i.e eat good for 3 nights then have pizza & chips then next night have veg & pie  i realised i had a problem so making further adjustment returning to stage 2 saw a clearance that even staggered the hospital staff - now i just hope for you guys out reading this that there is hope out there took me 15 years but it can take you alot shorter its just realising what work and what doesnt but lets not fool ourselves here fried food take aways sweets cakes are on the list of donts and i did this for for 15 years without the realisation..
« Last Edit: February 02, 2012, 09:11:16 PM by steelem »

Offline beat-the-p

  • Forum God
  • ******
  • Posts: 534
  • Gender: Male
  • Where's the sunshine at?
  • View Gallery
Re: why this is the alternative board so important for P?
« Reply #1 on: February 03, 2012, 04:10:01 PM »
Hi Steelem,

Thats really great that your food habbits are such a big player.. what are you eating as your diet? Do you eat anything processed at all now? What are your thoughts on oven chips? I probably eat them too much!!

Offline steelem

Re: why this is the alternative board so important for P?
« Reply #2 on: February 03, 2012, 09:30:57 PM »
oven chips lol - ye you can treat yourself once a week with oven chips this is my diet

1x 50 mg zinc 1x 700 epa 200 dha fish oil

breakfast
alternate the following cornflakes & rice milk / branflakes & rice milk / oats with blueberries manuka honey & rice milk / green smoothie / eggs on wholemeal toast
1litre of water

mid morning
2 scoops of protein powder with 300 ml of water & an apple

lunch
salad or vegetables with tuna or chicken or turkey breast  or salmon - may occasionally add a carb like jacket potato / sweet potato /wholwheat rice or pasta drizzle lemon & olive oil over veg & salads
1 litrs of water
once a week cheat meal i.e like today sausage sandwich on wholemeal

mid afternoon
2 scoops of protein powder with 300 ml of water or mackerel & a banana

diner
salad or vegetables with tuna or chicken or turkey breast  or salmon or stirfry - may occasionally add a carb like jacket potato / sweet potato / wholwheat rice or pasta drizzle lemon & olive oil over veg & salads
1 litre of water
cheat meal once a week - oven chips or pie or pork or steak with veg or salad

certain rules

definatley no - dairy ie milk  pizza  cheese / pop / biscuits / sugar / crisps / white wine /fried whatever

as for alcohol everything in moderation

i train everyday at the gym so this diet is tailored around me but if you stick to the main points here this really is healthy eating chucking in a cheat meal should not harm a balanced diet just avoid the Nos and keep hydrated

1 last thing at each meal alternate to what you had the day before with meats..





« Last Edit: February 04, 2012, 12:19:12 AM by steelem »

Offline Charlotte_S

  • Full Member
  • ****
  • Posts: 241
  • Gender: Female
  • Member of the UK Psoriasis Help Forum
  • View Gallery
Re: why this is the alternative board so important for P?
« Reply #3 on: February 08, 2012, 10:39:59 AM »
I just want to say that the alternative board is hugely important for those of us who have limited other options.  MTX is out for me as are the biologics in all likelyhood.  The creams don't work for me.  So I'm left with UVB and whatever I can find here. 

So far diet seems to be working for me, but it's been a really rough road to get to here.  I've had good periods and awful periods and I don't if diet will work forever even. 

But 'the alternative' path is pretty much all I have.  So for me this board hugely important.  Both for encouragement and advice.

Charlotte

Offline scratchydude

Re: why this is the alternative board so important for P?
« Reply #4 on: February 08, 2012, 01:01:28 PM »
Althought I'm not completely clear, this forum "saved" me lol

What's your protein made of Steelem ?

Offline NYGuy11

Re: why this is the alternative board so important for P?
« Reply #5 on: February 08, 2012, 09:05:25 PM »
Steelem, what's in your green smoothie?  I have a very similar diet to you, but I am not having great results.

Breakfast: Alternate between multigrain cheerios with almond milk; rice/cinnamon chex with almond milk; oatmeal with cinnamon and xylitol; and on the weeked, I'll have scrambled eggs with 2 pieces of whole wheat toast.  I'll also occasionally have a whole wheat bagel.

Lunch: I really don't eat lunch on the weekends except for a "jungle brew," which consists of lettuce, carrots, celery, lemon, and parsley.  During the weekday, I have almond better and jelly on whole wheat bread or turkey with avocado a little honey mustard or tuna with gluten free crackers.  On the side, it varies between carrots/hummus, celery/almond butter, Natural Applesauce, and fruits (pineapple, blueberries, mango, banana, strawberries).  I also have a handful of almonds with lunch.

Dinner: I have a salad with dinner...usually carrots, cucumber, onions, and occasionally avocado.  I have lemon and olive oil as the dressing.  The main is always chicken, fish, or tuna.  I'll have quinoa, brown rice, or sweet potato.  The vegetable is broccoli, cauliflower, string beans, or brussel sprouts.

I do eat gluten...I tried a gluten free diet for 2 months and that didn't do anything.  I never went dairy free, but right now, I have limited myself to dairy once a week...sometimes it's frozen yogurt with crushed almonds or some fat free cheese on my eggs.

I don't drink alcohol at all (only time I had alcohol in the last year was New Year's Eve).  I do allow myself a cheat meal about once a month just to keep my sanity.  I have never seen a reaction on my skin based on what I'm eating (i.e. scratchy having immediate redness on his forehead).

I'm not sure what to tweak.  Maybe I need more greens with breakfast.  I try not to eat fruit with breakfast since eating too much fruit isn't a good thing.

Offline steelem

Re: why this is the alternative board so important for P?
« Reply #6 on: February 08, 2012, 09:51:42 PM »
my green smoothie is handful of spinach 1 celery stick 2 apples half a cucumber JUICED - place juice into blender add ice and 1 avocado blend for 45 secs

i did this for a full 12 months have only really stopped over the last month with the cereals to see if the p came back - and to be honest very little in fact a few spots  and i simply zapped it with my uvb stick and gone - have you tried some uvb - obviously were in winter and if your like me with no sun then our d3 levels are down - either take with a pill or the uvb will dose you up - my opinion go for the uvb get clear and then youll find the p so much manageable with a diet like this  also you clear far quicker on uvb treatment with a good diet .. these are my findings so far..  obviously 3-4 meals a day skipping meals does you no favours as your body needs those nutrients - & yes the more greens the better ... 

Offline NYGuy11

Re: why this is the alternative board so important for P?
« Reply #7 on: February 09, 2012, 05:24:34 PM »
I got clear for several years doing Barney's Formula, uvb, and making improvements to my diet.  Then the P started slowly coming back even though I didn't change anything.  I stopped doing the uvb and went on Pagano.  While I have not been as bad as I was before I did BF, I have a lot of spots right now.

I haven't used the uvb since the summer.  I'm ordering all new lightbulbs for my uvb...maybe they got old and didn't work as well.  I don't know.  But I would love to clear without uvb since it's not the best thing to use it all the time for years and years.  But maybe since I've been on Pagano's for almost a year now, it'll work better.

It's really tough to figure out.  I'm eating the healthiest diet I've ever eaten and treating my body really well and I'm not seeing the fruits of that labor.

Offline Eveloftus

  • Forum God
  • ******
  • Posts: 1494
  • Gender: Female
  • Member of the UK Psoriasis Help Forum
  • View Gallery
Re: why this is the alternative board so important for P?
« Reply #8 on: February 09, 2012, 05:40:34 PM »
Nyguy I understand your frustration, you tried so hard with the diet. Good luck with the new nbuvb tubes, hope it works well for you.

Offline yorkie1990

Re: why this is the alternative board so important for P?
« Reply #9 on: February 09, 2012, 11:36:47 PM »
Hi
Just wondering do any of you avoid/minimise wheat? Everything i'd read on the diet side of treatment suggested to avoid wheat, but on you're diet plans it seems like you don't.

and also was wondering if any of you're psoriasis is/was caused by strep throat and tonsillitis?