Author Topic: A few questions from someone wondering about PsA  (Read 3484 times)

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Offline jdcatt

Re: A few questions from someone wondering about PsA
« Reply #20 on: December 21, 2011, 12:57:44 AM »
The pain dairy and printed links are good ideas Gav. I'm not sure yet if I want to go back to the same rheum or find another one.  Part of me wants to give her another chance but I have my doubts. I guess I can always go to another for a second opinion if I can't get anywhere with her. I'm giving myself until after Christmas to decide.

Thanks Gav!

Offline jdcatt

Re: A few questions from someone wondering about PsA
« Reply #21 on: January 20, 2012, 07:39:37 PM »
Thought I'd post an update. I saw the same Rheumy again today. This time I brought along a typed out medical history from the past 18 months. She sat and read the whole thing, one and a half pages.

She then asked to see my toenails and checked out my fingers. When she was done looking at them she asked if Psoriasis runs in my family. The fact that she asked that question at all makes me hopeful that she might be on the same page as me.  This *is* some kind of inflammatory arthritis, I just know it. She however did not say so. I will ask her on my next visit what she is thinking this is.

She gave me a script for 15 mg Meloxicam and wants to see me again in four weeks. Is Meloxicam used for anything other than arthritis? And what would it mean either way from an arthritis point of view if I do or do not get relief from the Meloxicam? I just kind of got the impression that she's waiting to see how I respond to the Meloxicam before we go any further.

Thanks for reading!  :)

Offline smose

Re: A few questions from someone wondering about PsA
« Reply #22 on: January 20, 2012, 08:11:48 PM »
First of all I need to say Hi - must have missed your first post.

Meloxicam seems to be an anti inflamatory so it can be given for any inflamation eg an injury. They are really the first line of treatment so hopefully you will get some relief
You don't stop playing cos you grow old, you grow old cos you stop playing. (G.B. Shaw)

Offline sarah2000_leeds

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Re: A few questions from someone wondering about PsA
« Reply #23 on: January 20, 2012, 09:13:59 PM »
Hi
Just relating to your story.  I presented in 2005 with joint pain.  At firstthe GP was sympathetic and understanding.  She did blood tests but because they were rheumatoid factor negative she then started to fob me off.  I went travelling regardless but onmy return I went back to her.  She said we haven't seen u for a while.  Like yeah I've been away.  Oh well it cant be that serious if we haven't seen u.  Here have some meloxicam.  Which yeah did help but wasn't quite the responxe I'd expected.  I struggled on but last year I had a really bad spell and was off work.

I dared to make an emergenecy appointment at my GP and saw a different dr.  She did tell me off for making an emergency appointment but gave me some naproxen told me to take cocodamol.  I felt cheesed off for being told off but at least she listened. Anyway I went back to see her.  She looked back at my results from 2005 and said oh your imflammatory response was up. I'll refer you.  Anyway saw him in september and he said pa and started me on methotrexate there and then.

I guess, I'm saying perservere.  See a different Dr and Rheumy.  Each has their different opinion and treatment whcih seems ridiculous when u read on here all of our experiences are similar.  I hope u get the diagnosis u deserve soon and more importantly the treatment.  And a personal thank you for letting me vent too!

All the best
S x x x

Offline jdcatt

Re: A few questions from someone wondering about PsA
« Reply #24 on: January 21, 2012, 10:45:52 PM »
Hi smose- nice to meet you! I looked up the Meloxicam and you're right, it's for inflammation. I took my first one last night and no affect yet, but it's way to early still.

Thanks for the welcome.  :)

Offline jdcatt

Re: A few questions from someone wondering about PsA
« Reply #25 on: January 21, 2012, 10:57:31 PM »
And hello to you also Sarah. I've decided to give the rheumy more time to show me what she's made of. If things get worse, as they have over the past six months, and she doesn't perform up to par I'll go elsewhere.

Thanks for telling your story. Do you have skin or nail issues? You didn't mention any so you have me wondering if you were diagnosed without them? If it weren't for my toenails I'd be wondering more about RA. I'm beginning to have issues with my voice going hoarse also and I know RA can affect the tiny joints (cricoarytenoid joint) in the larynx but I don't know if PsA can affect them. So I'm really unsure what to think sometimes.




Offline smose

Re: A few questions from someone wondering about PsA
« Reply #26 on: January 22, 2012, 03:59:04 PM »
Although most people say that PA is a mild imflamatroy arthritis compared to RA I am not convinced and think that both can be destructive. Any inflamatory arthritis can attack any connective tissue so it could be your larinx is effected but then it could be a side effect or something completly unrelated. I think i would talk to the doctor about it, Just in case.
Give the meloxicamtime to work as anti imflams take time to build up in the system - you should start to notice a difference after 3 or 4 days
You don't stop playing cos you grow old, you grow old cos you stop playing. (G.B. Shaw)

Offline sarah2000_leeds

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Re: A few questions from someone wondering about PsA
« Reply #27 on: January 23, 2012, 02:16:24 PM »
HI again,
my diagnosis was from my toe nails.  I didn't know i had skin psoriasis.  I was told as a child I had eczema but grew up thinking I had dry skin. I've always been into lotions and potions and thought everybody moisturised daily.  My feet however were like something else.  I had really dry skin, occasionally would get red scaly patches. My dad said it was the eczema and i believed him. I went to the Dr at one point and he said use a pumice stone and moisturise.  I used all the loofahs and cracked feet cream.. There was an advert about having really itchy feet and needing some cream for athletes foot.  I tried that.  I've always bitten my fingernails so theres not much to see but my toenails were awful.  Again I thought it was a fungal infection.  I bought all the stuff for that.  Nothing made them any better.

When i went for that rheumy appt, I thought I was going for a chat, didn't bother taking the old nail varnish off (what was left of it!) no matching underwear on.  I was mortified when he told me to take all my clothes off.  Anyway he started rooting thru my hair,  Ahh youhave problems with dry scalp?  Oh yeah I'd spent a fortune on shampoos and everything too.

He looked behind my ears, ahh u have dry skin here too - do I?

He asked me too sit forward he flicked my knickers back, no problems here (thankgod for that!)

He bent over double to examine my bellybutton all the while i was expecting him to lift my knickers at the front - thankgod he didn't!

Eventually got down to my feet.  He pointed out my nails I said I'd tried everything for them but nothing had worked.  Then he said hmmm psoriasis.  My mouth dropped no one had ever said that that word has only been mentioned to me when talking about patients at work.  Then when I was finally dressed he explained that some of my symptoms could be fibromyalgia but with my ear plaques and the toe plaques he thought it was pa and was gonna treat me for that to see where we went.

So thats where we are.  When he gave me the leaflets to read there was so much that ran true like the pleuritic pain, the tendinitis, the stiffness, pain in my buttocks and back, the nails and just how hard I tried to keep my skin feeling anywhere decent.  As I had above, my skin is better.  Last time I saw the nurse she thought I might need the methotrexate increasing due to still having pain but its just mild in my hands, not everywhere else.  As for the toenails, very slight improvement in my big toe but still ain't gonna be doing any foot modelling yet!

As long as you're comfortable at the mo and yo're receiving treatment thats the important thing.  And Smose, I agree.  I don't think one is worse than the other it just bloody hurts when bad.


Offline jdcatt

Re: A few questions from someone wondering about PsA
« Reply #28 on: February 05, 2012, 12:54:40 AM »
Well Sarah, I thank you much for sharing. It was after reading your last post that I decided to get off my butt and really do something about these toenails of mine. Your post really struck me because I used to have a lot of trouble with the skin on my left foot which just happens to be the foot that hurts a lot and is the foot where my toenail issues first manifested.

It was probably ten years ago now but at the time it was pretty bad. The skin on some of my toes and the bottom of my left heel was so dry and cracked and some of those cracks were so deep that it was painful. I could not walk on carpet barefoot because the carpet would snag the dry skin on my foot and rip the skin and of course that really hurt. I had forgotten all about that until reading your post. I remember trying all sort of different lotions and trying the pumice stone and slathering my foot in lotion then putting on a warm sock to try and keep some moisture on my foot to help with the dryness. I always thought it odd that it was just the left foot. Anyway the dry skin gave me trouble for a couple of years then just went away. Gone, like nothing had ever been wrong.

I am also a lotion addict and have bottles of it here at home and at work so that I never have to worry about not having access to it.  If I don't use it regularly  my knuckles get chapped and dry then cracked.

Now whether or not that foot issue was a manifestation of  P, I have no idea. What you wrote about was just so eerily familiar though. Anyway after reading your post I decided to get down to the bottom of things and figure out what's wrong with my nails. I got back into the dermatologist and a culture is now being done on my toenails to rule in/out a fungus. While there I told him about the joint/muscle pain, the swollen fingers, the iritis and of course the worsening toenails. I asked him if there was anyway this could possibly be P on my toenails and he said most definitely it can show up in just the toenails. He then did a thorough check of my scalp and arms and legs and thankfully only asked about the beneath the knickers area. No P anywhere. So, just waiting for the results of the culture now and then I'll have more info with which to work. If it's not P then at least I'll know and I can move on no longer worrying about it and if it is then that will be really useful info for my rheumy.

Bet you'd never have guessed that your post had lit a fire under somebodies rear and inspired them to work harder at figuring things out. Well it did!  ;D

Offline jdcatt

Re: A few questions from someone wondering about PsA
« Reply #29 on: February 05, 2012, 01:02:57 AM »
smose you were correct, I began to notice a difference with the Meloxicam in about 4 days. I still feel the pains but they are definitely reduced. As a matter of fact I can feel when the Meloxicam is wearing off because the pain increases. I decided to stop the meloxicam for two days as an experiment to see if the pain came back like it was before. And sure enough I noticed a definite difference. I felt like I did before starting the Meloxicam. So back on it I go.

One thing though that I don't understand is this....I've had two headaches since starting the Meloxicam and it didn't seem to help with them. I thought that was strange.