Author Topic: I'm so glad I found this site!  (Read 818 times)

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Offline Lise-jy

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Re: I'm so glad I found this site!
« Reply #10 on: February 02, 2012, 01:26:03 PM »
Thanks to everyone for your words of support. I wish the staff at the clinic had told me about this site. I'd have come on much sooner. I feel much better already!

Gav, from reading your posts I think I'm in a similar situation to you in that I'm in treatment before things have got too bad. Whilst my GP was pretty rubbish (he's been much better since having a black and white diagnosis from a consultant!) I feel quite lucky with my rheumy as he was the one wanting to start me in treatment asap and it was due to me that I didn't start until 6 months later.

It's early days with the hideously painful Humira, but it's still early days.

Lise

Offline Lise-jy

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Re: I'm so glad I found this site!
« Reply #11 on: February 02, 2012, 01:26:59 PM »
Oops, that was meant to say it's early days with the Humira, but fingers crossed (not literally obviously, as that would really hurt!).

Offline Gav74

Re: I'm so glad I found this site!
« Reply #12 on: February 02, 2012, 02:04:16 PM »
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fingers crossed (not literally obviously, as that would really hurt!).

lol, that reminds me that I find myself having to remind/tell people that I meet to be gentle with shaking hands, as it really bloody hurts when I get some macho muppet who wants to prove his manliness with a death-grip handshake.
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Offline ottergirl

Re: I'm so glad I found this site!
« Reply #13 on: February 02, 2012, 04:39:42 PM »
Hi Lise jy
Welcome from me as well.  You might find that once you've had your 4 weeks off you have recouped enough to go back to work and, with just a few adjustments, can carry on.  That is the aim of all this 'scary-meds' stuff we have to take, I guess.  I had to have 4 weeks off when a steroid injection aiming for my spine missed and hit my lung space  >:( but the upside was, it gave my body a well needed rest.  When I did get back to work, I really felt the benefit of it.  So put your feet up and enjoy the luxury, stay out of this horrible cold air and really look after yourself, you know you're worth it!
 :)
Tracy

PS to Gav - I am still recovering from receiving one of those hand-shakes yesterday so I share your pain.
« Last Edit: February 02, 2012, 04:41:58 PM by ottergirl »

Offline smose

Re: I'm so glad I found this site!
« Reply #14 on: February 02, 2012, 06:54:38 PM »

[/quote]

lol, that reminds me that I find myself having to remind/tell people that I meet to be gentle with shaking hands, as it really bloody hurts when I get some macho muppet who wants to prove his manliness with a death-grip handshake.
[/quote]

SO no that feeling - I avoid shaking hands if I can but sometimes its just rude not too. Today at Uni I was helping out with a visit of students from a local school and I could of thumped the female teacher cos she squeezed so hard!
You don't stop playing cos you grow old, you grow old cos you stop playing. (G.B. Shaw)

Offline sarah2000_leeds

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Re: I'm so glad I found this site!
« Reply #15 on: February 02, 2012, 10:23:09 PM »
Welcome Lise jy
Hi from me.  I'm fairly new to this site after being diagnosed last September.  Nobody had told me about it here, but I've gone thru a rough few weeks and its lush to know that you're not alone.  I've learnt some really useful things aswell as receiving comfort from lovely people. 

Hope teh humira works soon so u can get those fingers crossed when wishing for something else

S x x x
  ::)

Offline Lise-jy

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Re: I'm so glad I found this site!
« Reply #16 on: February 18, 2012, 01:40:11 PM »
Update:

Well I went to the doc's yesterday and have been signed off work for another 4 weeks. They wanted to do 8 weeks, but I said that felt waaaaaaaay too long!

My husband gave me a stinking cold for valentine's day (I'd have preferred some chocs!) so I was pretty crappy when I went to the appt. It also meant that I wasn't able to have my last Humira injection, so I've only had 1 out of the 3 I should have had recently due to different bugs. The doc wants me to have had a few before I get back to work and I have to say I agree, even though I feel guilty for being off.

With the cold weather recently and feeling a bit off my PA has been worse - my sleep has been crappy as well, so I'm feeling shattered.

I'm not feeling quite so bad about being off as I was before, but I do struggle with 'relaxing'. I'm normally only off work when I have something planned, so this is very odd. I've done lots of reading (my Kindle has been a life-saver as I struggle to turn the pages on books) and watched lots of films on Sky. I've also started swimming again and I'm starting a beginners' yoga course on Monday (the teacher has lots of experience with people with different types of arthritis, so should be good).

I'm also getting my head around having PA and am feeling much better about it - I don't feel quite so sorry for myself!

Lise

Offline Am61

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Re: I'm so glad I found this site!
« Reply #17 on: February 18, 2012, 06:13:07 PM »
Hi lise-jy, like you I am so thankful to have found this site, has a wealth of information and there is always someone to listen to you if you want to have a moan, have already had my moan earlier this week lol! also another website which has information available, leaflets etc You are not allowed to view links. Register or Login. They too are very helpful and they have a Facebook page.  Hope all goes well for you and enjoy your chilling time at home
 :)
Smile, it's infectious! :)

Offline Maria2

Re: I'm so glad I found this site!
« Reply #18 on: February 18, 2012, 07:11:04 PM »
Hi Am61,
Never seen that website looks quite good,
Thanks Im off for a browse,
Maria