joints playing up

[Skinful.]

I feel your pain. Massive amounts of pain, normal looking joints. Living life in slow motion...

I'm trying hard to find some positives this week end. The Sainsbury's delivery man (my only indulgence LOL) bought my shopping all the way into the kitchen - my usual teenage helper son was off being done over in a Rugby match last night. The kindness of such a simple act of helpfulness was lovely. He's also obviously been listening when I apologise about ferrying only the tissues and light stuff into the house. Aww.

GP friend of mine says that I need to accept the pain rather than fight it. Somedays this works... and I don't roll my eyes and give her the 'yeah whatever' teenager response. I remember to try...so I 'sing' the AHHHHHHHHHHH as I hobble up and down stairs. Fold myself in and out of the car.

Sometimes makes me laugh...

What gets me really is the mental strength we need. Totally unrecognised.

Maybe we need triple clinics.

Sending sunshiny thoughts.

[John Boy]

joints are still getting worse had to use a drill to night and both hands locked up very painful takes about 10mins then can use hands again

has been getting a lot worse lately any one else getting this Stellara is not helping joints

[hank]

Hope things get better John, I hate it when joints do that.

I'm just starting Humira will give it a go and see what happens although mine fluctuating a lot I have found that the exercise programe is working for me and then there's the odd days when PA strikes back!

[elliejay]

Hi
Just to add a moan !
Helped get some boxes out of the loft yesterday. Now my elbows, wrists, fingers, knees, and feet are really painful.
So I sympathise with others who are suffering.
Oh well take some pain relievers and try to go to work.
Ellie

[babyblue]

JB,

I do sympathise and to all of you who suffer so.  Its such a dreadful condition especially when joints lock in
excruciating pain and at clinic (pain control) they ask, on a scale of 1-10 how bad is that ... I say .. 25 !  Its so bad that I'd prefer to lie down and go to sleep .. and sometimes just as I'm waking in the morning, I am in dream like state thinking ... it's all been a bad dream.  I'm gonna wake and find today am perfect ! 

Then with one movement I realise I'm within this nightmare that is pain  :'( ... last week while clearing out came across a report from pain control specialist to my GP .. I re-read it and it made me  :'( ....

ooo well onwards and upwards, .. we live to fight another day, but it is a constant battle and we live in a type of suspense, wondering if today is gonna be better or worse.  Saying all of that, I'm doing better recently - popping glucosamine and finding some relief (but not free of pain) .. gotta be them and my diet - healthy eating plan.

Wishing each of you well .. and lots of relief - remember to listen to your bodies .. don't overdo it as you suffer so much more.

((( big fluffy hugs for all who need one )))
BB
 

[moanalot]

Hiya all,
Sitting here nauseas, in joint pain and feeling woe unto me. I am also beginning to feel that I need to change over to some other drugs. If I do anything around the home which stresses me. Just taken another tramadol and sofar its not helping. May just curl up in bed and see if I can sleep it off. I am also waking up in the mornings with pins and needles in both hands/fingers and joint pain in shoulders, as I like to sleep on my sides.

I am really pee'd off.......

[kellyw]

feel for yu both suffering the same ...as for do the bones hury hell yeah lol ike their crumbling my best description OUCH !! LIKE U JOHN BOY I HAVE TO TRAVEL TO TWO HOSPITALS for treatment of P and PA but we r just about to go into biological drugs so should be wrkin with a team of rhuemys and dermys in one place... do u mind tellin me how the bois r for you comapred with mthx !! iv been on mthx for 7 mths 20 mg only 8 st and thats a mega high dose with no effect so we lookng for change something which sprised me was when i said shall i stop taking mthx til they prescribe bio and she said no they will wean me off do u know why ?? ;lol
x would be great to hera frm you Kelly x

[kellyw]

JOHNBOY completely the sam ei have no swelling but complete agaonising daily pain to the pint i waitin every 3 hrs for my painkillers but the rhuemy says im fine coz of no swelling WELL HELLO IT STIL HURTS GGGRRRRRR he says oh well ur ody has to show the pain somehow !! o i said do i ust continue to take painkillers for rest of my life he says yes and walks out room im oly 26 fucks sake gggrrrr just cried and thought bumhole .. i appreciate its gd our joints arent swollen but they have to realise we still experiance pain !! were nt swelling lol coz im constanly taking ibfrofen every 4 hrs all day every day

[Skinful.]

Feeling the pain with you guys. Don't know if it's the rain or the Spring cleaning I keep trying to do. I've paced myself but it's obviously still too much.

Baby Blue I'm with you. I wake every morning and think I'm normal only to be bought back down to earth...

Oh well. Always the kids Easter Eggs to look forward to stealing and eating if things get too much this week!!!!!

[karen t]

Just wanted to say I agree and feel the same. I have got swelling in finger ends which makes it hard to do everything. I have to type with onley certain fingers.

Its the pits at the moment I've had to take time off work which I never do.

Hopeing to start mtx when liver test is ok, I know it takes a while to work but the thought of somethng helping is keeping me going.
Can't take inflams because thats why liver test was not ok (they think). Its all pooh but I'm looking on the postive. I also wake in the morning and think I'm cured till I try to use my hands and ouch plus a few swear words I know I'm not. i don't seem to have any strength
in my hands.

I'm so glad I found this place so I can talk to you all, and share our feelings it really does help thanks x