Author Topic: Just need to off-load  (Read 835 times)

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Offline Islander

Re: Just need to off-load
« Reply #10 on: September 07, 2010, 10:31:08 AM »
hello... i really feel you here... a month before my wedding my hubands mother was diagnosed with motor neaurone disease, same week hus dad had a stroe, a week later my mum was hospitalised for emergency surgery. his parents live on a diff island so we hardly ever get to see them and they really need help. she's fading fast. it is super hard. my best advice is put yourself firts. i know that sounds harsh but how on earth can you be there for someone else when you aren't coping yourself. so take meds, not nec mtx, but something to manage pain etc, discuss the situation with ure doc and see what they say. take time out, or you time to give yourself a break so your batteries get a recharge... theres nothing else i can really say. you are in a horrible situation and i wish i could help but no one really can. all i  can say is we are here for you... you CAN do this, ok? it wont be easy but youll get through it. love, hugs, wishes, positive vibes and prayers (whatever works for you) all being sent your way!
Yesterday was a bad day... f##k yesterday. That's why God or whoever made new days.

Offline riaY

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Re: Just need to off-load
« Reply #11 on: September 07, 2010, 10:41:05 AM »
Hiya sweetheart I can't really add much to what's been said but I couldn't bear not to reply even if just to show support for you. I'm so sorry you're having such a nightmare of a time and hope things do settle down a bit at least soon. You need to remember to take care of yourself first at the moment. You'll not be able to help anyone if you're bad yourself and could make yourself worse by doing too much. Good luck and don't forget we're all here for you.  :-*
« Last Edit: September 07, 2010, 06:06:59 PM by riaY »
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Offline IHPA

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Re: Just need to off-load
« Reply #12 on: September 07, 2010, 10:49:52 AM »
Scampi, I'm so sorry to hear about all you are going through.  It is really tough.  I know you can handle it though, even if you feel you can't.  The fact you are talking about it means you will be able to find reserves to keep going on.

I endorse what others have said...do start the Mtx.  You will start on a low dose, and the folic acid you take with it will help sort any nausea.  Let your doctor know what you are going thru, so hopefully they can support you too.

My Dad had Parkinsons.  He quickly became too much for my mum to look after, and although we found it really hard to accept, he had to go into a resthome.  This is something you, too, probably won't want to hear.  But your Dad has his own health worries, and taking care of your Mum may be just too much worry for him to handle.  It is scary being around Parkinsons sufferers, as they are so fragile and they fall so easily.  Dad had some horrific injuries from falling, and was in and out of hospital as a result.  He had an emergency bracelet but the damage is done before the ambulance gets there.  Parkinsons sufferers need help so they don't get into these situations in the first place.  They need input from physios and occupational therapists.    I tried to get them to accept live-in help, but they were against it.  I can understand it...strangers in your home.  But it would have allowed him to stay at home longer.  In the hospital they often played around with his meds, which would then create hallucinations.  We finally had to say "no! don't touch a thing, leave it alone!".  Parkinsons sufferers need their meds given to them at exact times of the day.  They need a high level of care.  Can your father do that?  Particularly with his medical conditions?

You may not want to hear all this, and you did say you wanted to just off-load.  I understand, and I apologise if my input is unwanted.  I hope you have someone supporting you, so you can support your parents.  I hope there are other brothers and sisters who can share the load and help your parents cope.  You all need to sit down together and work out a plan.  For everyones sake.

Offline Scampi

Re: Just need to off-load
« Reply #13 on: September 07, 2010, 11:40:35 AM »
Thank you all so much for taking the time to read and reply.  I was feeling really low last night.

I have a brother, but to be honest, and I know this sounds harsh, he's next to useless  >:(  We do have close family friends who have already put a plan in place to look after my Dad's beloved dog if or when he can't, and will help with whatever they can otherwise.

My Dad is pretty much on the ball with care for Mum - he's already put the wheels in motion for Social Services to get involved, but I think she's a long way from needing residential care (don't worry about mentioning it - I'm well aware it may become necessary).

Thank you all again for your replies - it helps to know there's people out there that understand how I feel.  Best wishes to you all x

Offline Islander

Re: Just need to off-load
« Reply #14 on: September 07, 2010, 11:44:26 AM »
you'll be ok scampi... i know this is horrible but seems like you've got a good head on your shoulders... dont be too hard on yourself, yeh?cheers and all the best x
Yesterday was a bad day... f##k yesterday. That's why God or whoever made new days.