Author Topic: Newbie - scared  (Read 6068 times)

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Offline Gav74

Newbie - scared
« on: November 23, 2011, 10:18:14 AM »
Hello.
I'm not really looking for specific help and advice, more just sounding off a bit and it's a long story so get comfy.
Before I begin, I don't have a diagnosis for PsA, but I think it's a strong likelihood.
I have had psoriasis in my scalp since about 20 years ago. About 15 years ago I went to an Army GP and he told me, it's probably psoriasis; use a coal tar shampoo twice a week and a gentle/baby shampoo the rest of the time. To be fair, that's pretty much kept the dandruff at bay and the itching is minimal.
I also injured my back quite badly in the Army, so I'm ruling that out of considerations at the moment (even though I'm aware that it could be related now).
For the last few years, I've also had psoriasis in my ears, on my cheeks and on my top lip. Again, I can keep that all under control with careful hygiene and creams. Most people I know have no idea about it.
I've always been fit and strong and rate fitness very highly as a priority, however, I've had to give up running in the last few months because of knee pain; although the GP has put that down to OsteoArthritis and I'm inclined to agree.
Now, here is where the concern comes. My knees are hurting around the tendon areas even though I'm not exercising, I'm getting a really bad elbow tendon problem and my neck aches a lot, along with crunching/grinding when I turn my head. Also, I've noticed that one of my fingers really hurts at the end joint when I do things like operating the indicators in the car, or catching it on something.
My joints are stiff when I wake, I have disturbed sleep every night and my knees and elbow ache and burn after exercise.
On top of all of that, I haven't spoken to him about it yet, but I've not long since reconciled with my father after 20 years only to find he has psoriasis and arthritis!

I went to see my GP, primarily about the elbow and he was a nightmare. Didn't listen at all, barely let me get a word in. He dismissed my knee problems as age related (I'm 39) and after poking and prodding told me to take ibuprofen for my elbow and come back in a year if it hasn't got any better. Oh, and apparently it's impossible to have arthritis in your elbow!

I insisted on seeing another GP and he at least gave me some exercises for the elbow and told me to come back in 2 weeks if it didn't improve. He also had a proper look around my knees before confirming it was probably wear and tear, although I didn't tell him about the tendon issues.

Anyway, that's it. If I do have PsA, it's either early or very mild and my doctor is a quack. He sees a relatively young, fit-looking man walk in and you can see in his face that he's thinking 'Stop wasting my time, I have ill people to deal with'.

I have printed out that report that talks about early treatment to take with me and I intend to insist on being referred to a Rheumatologist when I go back again, so that won't be an issue.
I am scared though, very scared. I want to get help with whatever is wrong, but I don't want to be told that I have PsA. I guess I'll be back on here with updates after I've got up the nerve to see the GP and demand a referral.
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Offline newshaz

Re: Newbie - scared
« Reply #1 on: November 23, 2011, 12:46:50 PM »
Hi Gav,

Welcome to the forum.  Think your doing the best thing on insisting for the roomy appointment. Good luck witht hat. Look forward to gewtting your updates. I have nail Psoriasis, PsA and Fibryalgia, asthma, thyroid issues, etc. 
Sharon.

Offline peter05

Re: Newbie - scared
« Reply #2 on: November 23, 2011, 01:47:03 PM »
wellcome to PHO firstly i hope you are wrong & it is not PA, but best to get it sorted out, I know my PA started 22 years ago with my nails but my DR gave me something for fungus, my knees was my work, my shoulder was my  work etc etc it took another 15 years to be told it was PA & sometimes you think is my life going to be never without pain but with good treatment  life can be good, so I hope you get some proper treatment soon keep fighting for it, let us know how you get on people on here will always be helpfull

 PS there are lots of treatments for P & PA

Offline smose

Re: Newbie - scared
« Reply #3 on: November 23, 2011, 04:33:51 PM »
Keep on at them! I have had joint probs on and off since i was a teenager but never enough to raise any major concerns then three years ago PA hit big time and luckily I saw a GP who was up on arthritis and he referred me straight away. However even then the Rheumy first just changed my anti imflamatories and told me he'd see me in three months - when i wen back with no improvement he actualy said that he hadn't expected to see me again!

Anyway after that i was left ages between appiontments getting nowhere but then they got someone new and I feel I am getting somewhere. This year I have seen occupational therapists and have learnt to pace myself. I had an op on my shoulder which has helped enormously and am being assessed for biologicals.

The things is that even if you do have PA you may never develop the extreme sysmptoms some of us get and even if you do it really isn't the end of the world cos you CAN learn to live with it. I have just given up work to go back to uni which i probably wouldn't have done without PA and I love it!!

You will find loads of help and support on here and its an excellent place to rant when things go badly
You don't stop playing cos you grow old, you grow old cos you stop playing. (G.B. Shaw)

Offline LondonKate

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Re: Newbie - scared
« Reply #4 on: November 23, 2011, 05:34:05 PM »
Welcome to PHO... I hope you don't have psoriatic arthritis. What do your fingernails and toenails look like? Nail pitting it's often present when psoriatic arthritis is arriving...

Have you tried anti-inflammatories, prescription type and found out if they make any difference?

There are plenty to choose from these days
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Many of us started off with minor PA and only took periodic anti-inflammatories. Certainly my case this kept pain at bay over a long period of time. Eventually at my doctors encouragement I took anti-inflammatories continuously and as things got worse and was referred to a rheumatologist.

Are you still in the Army? Hope not! and that could be difficult with sorting out your joints.
Perhaps more typically joints become swollen, something called dactylitis you don't describe that so it could just be osteoarthritis.."just" is not much help at your age. Who wants to be suffering from osteoarthritis... but rheumatologist referral is probably the best bet for your peace of mind.. PA is a difficult diagnosis so I hope you get referred to rheumatology department in a large hospital, where seronegative arthritis is more likely to be seen commonly

I am glad you found this but I hope you don't have PA!

Kate
Kate

Offline Gav74

Re: Newbie - scared
« Reply #5 on: November 24, 2011, 10:14:50 AM »
Thanks everyone.

Kate, my fingernails and toenails seem OK and there's no dactylitis, it just seems that over the last few weeks/months pain in my joints has get worse and worse all of a sudden. My left knee is killing me this morning. Generally I'm not in a lot of pain, but at times like this morning, the over the counter meds don't seem to touch it at all.

I left the Army quite a while ago, but that's a double-edged sword. My joints are under a lot less stress, but medical treatment in the Army is a lot quicker than here in civvy street.

I'm working from home tomorrow, so I'm aiming to get to the GPs to try for a referral. They're most likely to refer me to Harlow Hospital in Essex; I know that they have rheumatologists there, but whether they're clued up or not, who knows?
Is there an easy way to find out the best place to go locally? I'm not counting on the GP being very helpful.

I also hope I don't have PA, but if I do I want to know now so it can be controlled before I end up disabled and in constant pain; particularly as there seems to be some evidence that it can be stopped if treated early and aggressively (maybe that's a little insensitive considering the trouble that much worse off people on here have to go through, but I'm sure you understand.)
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Offline niceman

Re: Newbie - scared
« Reply #6 on: November 24, 2011, 03:50:18 PM »
This shows they have someone there with a special interest/area of expertise of PsA.

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Interesting to note he trained at Leeds which is my local hospital and is supposedly a leading centre for PsA and rheumatology in general, so another good point

Offline Gav74

Re: Newbie - scared
« Reply #7 on: November 24, 2011, 03:56:51 PM »
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This shows they have someone there with a special interest/area of expertise of PsA.

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Interesting to note he trained at Leeds which is my local hospital and is supposedly a leading centre for PsA and rheumatology in general, so another good point

Well spotted, that could be useful thanks.
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Offline peter05

Re: Newbie - scared
« Reply #8 on: November 24, 2011, 04:34:41 PM »
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Thanks everyone.

Kate, my fingernails and toenails seem OK and there's no dactylitis, it just seems that over the last few weeks/months pain in my joints has get worse and worse all of a sudden. My left knee is killing me this morning. Generally I'm not in a lot of pain, but at times like this morning, the over the counter meds don't seem to touch it at all.

I left the Army quite a while ago, but that's a double-edged sword. My joints are under a lot less stress, but medical treatment in the Army is a lot quicker than here in civvy street.

I'm working from home tomorrow, so I'm aiming to get to the GPs to try for a referral. They're most likely to refer me to Harlow Hospital in Essex; I know that they have rheumatologists there, but whether they're clued up or not, who knows?
Is there an easy way to find out the best place to go locally? I'm not counting on the GP being very helpful.

I also hope I don't have PA, but if I do I want to know now so it can be controlled before I end up disabled and in constant pain; particularly as there seems to be some evidence that it can be stopped if treated early and aggressively (maybe that's a little insensitive considering the trouble that much worse off people on here have to go through, but I'm sure you understand.)





thats not insensitive get your treatment as soon as you can I am sure we all want you to get better as quickly as possible :)

Offline smose

Re: Newbie - scared
« Reply #9 on: November 24, 2011, 06:43:13 PM »
can fully apreciate that sentiment! Both my son and daughter are also seeing rheumatology they are in their early 20s and I will push for them to get treatment early in the hope they never get to the stage I am at.
But even I feel that there are a lot of people worse off than me
You don't stop playing cos you grow old, you grow old cos you stop playing. (G.B. Shaw)