Your Humira Experiences

[Mantaman]

 I've just got my Humira and due to a slightly complicated situation i'm going to do my first injection with the Rhumo nurse at the hospital, not that i really need to as needles dont bother me. i was in hospital a couple of years ago and because of my flakey skin plasters wouldn't stick very well so the canula (perminant injection device) kept coming loose, they got fed up of having to sort me out all the time so in the end they gave me the kit and let me repair myself, so no i'm not frightend by needles!

 This will be the real test of Hunira because i have a very bad case of p and pa, most of my body is covered in flakey skin and most of my joints are suffering one way or another, for example both my hands are covered in thick red scales and the top of my spine is so far curled over i can only just move my chin away from my chest,so if Humira even has some effect on me it will be a miracle drug!!!

[alfie]

I have been having Humira injections along with 15mg Methotrexate since February. I am so thrilled with the results as I have not been free of P for 40 years. Even with some good effective treatments over the years, the results were short-term and I still had scalp P, and in other places 'where the sun don't shine' .
Apart from feeling tired and a bit achey in my legs, Humira has been a godsend IMO.
Because of having PA and OA, I was finding it difficult to apply all the topical treatments regularly. To be free from this awful regime, where my life had to revolve around P, means so much. I can put up with the manageable side-effects.
I have put on weight, but whether this is due to the Meds, I don't know for sure. Same with feeling depressed. Is this a side effect? I don't know. It may be due to other issues.
All I know is I hope I can remain on Humira for the forseeable future.

[trees2]

Hi have just injected my 5th shot of humira and I feel fabulous. I have been on since June 21 along with MTX weekly. I cannot believe how well I feel. I still have pain but my ESR is down to 4 for the first time in 4 years.

[flower fairy]

I have done 4 shots of humira so far and have noticed a great improvment in PA symptoms and no side effects unless two days of all over body itching which happened after the last shot is actually a side effect or reaction. GP was'nt sure but said if it was related to humira it would be worse the next time, so I'm a bit anxious about the next one incase this is the beginning of an allergic reaction, did anyone have anything like this happen to them with Humira. I am just hoping it has nothing to do with it and was caused by the humid weather we'v been having.
         I also developed a sudden strep tonsillitis infection over the weekend and had to return home early from a break in dublin, by sudden I mean perfect going to bed sunday night and monday morning waking up with a gross looking throat, I guess this is one of the risks we take on immune suppressants .

[trees2]

I have to say I feel really healthy on the Humira. Not that I felt sick before but I feel really good. On the plane home there were 2 people sick right beside me and I did not catch anything. I was amazed

[elliejay]

Alfie, have just caught up with this thread.
how does the humira affect your OA ? Sometimes I find when I've had draining and steroids in knees the lack of fluid makes OA worse
Ellie

[alfie]

Hi Ellie, to be honest I'm not sure. My OA is certainly worse now in some area's, but whether this is due to Humira, I don't know. Probably the extra weight I've put on is having detrimental effect, particularly on my left knee (had the right one replaced two years ago) and hip.
After disc surgery last November, which is OA, I have been less mobile, so the weight has been an issue, but just started a diet.
My left wrist and thumb is so painful that the thumb feels as though it is broken some days.
After initially thinking the disc surgery had been successful, it wasn't. The nerve damage in my right arm and hand seems permanent now.
For all that, I am still delighted with the Humira results on my skin and PA. Two less things to have to cope with.
Good luck with your treatments.

[swallow]

I started on Humira just over 12 months ago and at first it was like a magic bullet, absolutely great from day one. I was able to give up all pain relief and got back into cycling, something I love, even bought a new bike but after about six months it stopped working. Now taking Leflunomide
with it and I am feeling much better again. It's only been three weeks and my GP says it's too early to expect results. I have changed my diet, lost nearly a stone in weight and have re-joined the gym so may be that's brought about the improvement, who knows, I'm just enjoying the relief

[peter05]

It is 14 months on humira now, just been to see the derm she says every thing is fine and I can continue on humira, I am 100% free of p and 80% free of pa, one interesting thing happened at my clinic they used a type of phone which had body on it, so as they looked all over my body they just touched the parts of  the body on the phone & then it all came up on  a big screen on the wall,  never seen that before,

[GRIFTER123]

   You will be fine and i hope it works for you.I have been on it fortnightly since december and have had no change whatsoever. When i began on the biologics in feb 2010 i started on Enbrel and couldn't believe how fast it worked for me.As i have Psoriatic Arthritis and had it very severely the consultant thought Enbrel  would be best suited to me. Anyway i hope you have great success with Humira and please dont worry yourself.I'll explain why i was changed to Humira on another post.....GRIFTER